Hospice-at-home charity urges local support for seriously ill children, like Fenn, this Christmas

This Christmas, Jessie May Children’s Hospice at Home is calling on the Bristol community to help ensure no family caring for a seriously ill child faces the festive season alone. The charity plans to support 30 families across the city this December, providing vital care and moments of joy when they’re needed most - but they can only do it with the public’s help.

One family who knows just how much difference Jessie May’s care can make at Christmas is Fenn’s. While many look forward to mince pies, pantomimes, and visits to Santa, Fenn’s parents, Wendy and Harry, face a festive season shaped by their daughter’s life-limiting condition – and supported every step of the way by Jessie May. 

Fenn, now two, was diagnosed with Spinal Muscular Atrophy (SMA) as a baby. Her condition affects muscle strength and movement, requiring ongoing respiratory support, tube feeding, and physiotherapy.  

“Her first year was a blur of medical appointments, equipment, and fear,” says mum Wendy. But through it all, Fenn’s calm and cheeky personality shone through. 

The turning point came when the family was referred to Jessie May. Her family first met nurse Lois, and since then, their regular visits have become an important part of family life. 

“It’s been life-changing,” Wendy shares. “Before Jessie May, I couldn’t leave Fenn with anyone. Now I can go to yoga, have lunch with my husband, or just breathe, knowing she’s in safe hands.” 

One moment that stands out for Wendy happened in the garden last summer. “I looked out and saw Fenn fast asleep in Lois’s lap. It was so peaceful. That trust, that bond - it means everything.” 

Jessie May’s hospice-at-home model allows families to receive care in the comfort of their own space, avoiding the stress of travel and hospital settings. “When we go to other hospices, it’s a big effort,” Wendy explains. “But when Jessie May comes here, it’s easy. They bring joy right into our home.” 

This Christmas, the family is looking forward to hosting Wendy’s parents from the US and attending Jessie May’s festive party for the first time. “It feels like a fresh start,” Wendy says. “We’re just hoping to make lots of happy memories, and I know Jessie May will be part of that.” 

Nurse Lois reflects, “Christmas can be emotional for the families we support. We try to bring a little magic - whether that’s festive crafts, a visit to see the lights, or simply giving parents a moment to relax. For children like Fenn, it’s about joy and inclusion. And for us, it’s a privilege to be part of those memories.” 

With the support of the local community, Jessie May nurses can continue to visit families like Fenn’s - giving Mum and Dad peace of mind, and Fenn the chance to simply be a child. 

This Christmas, you can make that possible.  

To sponsor a family like Alex’s this Christmas, visit Christmas Appeal 2025 - Jessie May.